Caring For The ME Patient Jodi Bassett Byron Hyde 9781445296395 Books
Download As PDF : Caring For The ME Patient Jodi Bassett Byron Hyde 9781445296395 Books
Essential information on the neurological disease M.E. sourced from the world's leading M.E. experts. Suitable for M.E. patients, their friends and family, partners, carers or doctors. The book includes a Foreword by the world's most experienced and knowledgeable M.E. expert Dr Byron Hyde.
Dr Hyde writes
"There is so much false information that is picked up and disseminated it is near impossible to hold one's head above the water and sift through this morass of misinformation. Any attempt to seek the truth is always a major difficulty. Somehow, Jodi Bassett and Hummingbird have managed to plow through this field of weeds."
"This is a book that deserves being read, not only by patients and physicians with an interest in M.E. but the bureaucrats in the USA Centers for Disease Control who have done so much damage to the understanding of M.E. I recommend her book to all and wish it every best success."
From the cover
For friends, family and partners Your friend or family member may be just as ill and disabled as someone with M.S., yet have almost no appropriate social support at all. They may also be dealing with serious medical neglect or even overt abuse. This happens due to the deliberate, financially and politically motivated confusion between the distinct and measurable neurological disease M.E. and the vague fatigue-based wastebasket diagnosis of 'CFS'. These are two entirely different entities. Find out what is really going on and why.
Learning the facts is not time-consuming or complicated, and may improve both the patient's quality of life, and your relationship with them. You can help the person in your life that has M.E. Supporting your ill friend or family member more fully by being aware of the basic facts of M.E. could make all the difference in the world to them. This book shows you how.
For medical professionals Patients with M.E. have some care needs which are common to a variety of other diseases, and others that are unique and with which hospital staff, doctors or carers may be wholly unfamiliar. If you are providing care for someone with M.E., you will find knowledge of some of the basic M.E. facts vital in order to avoid additional unnecessary suffering and disability.
Taking a small amount of time to learn the facts about the disease can make an enormous difference to the M.E. patient's quality of life and prognosis. It could even be life-saving. Providing appropriate care and support for the M.E. patient could make all the difference in the world to them. This book shows you how.
Jodi Bassett is the founder of the international M.E. charity, HFME. Jodi contracted M.E. in 1995 when she was just 19. HFME contributors also aim to advocate for those non-M.E. patients who have been given the always meaningless 'CFS' diagnosis, and subsequently denied correct diagnosis and treatment.
"Myalgic Encephalomyelitis is primarily a neurological illness. It is classified as such under the WHO international classification of diseases, although non-neurological complications affecting the liver, cardiac and skeletal muscle, endocrine and lymphoid tissues are also recognised." Dr Elizabeth Dowsett
"I have some M.E. patients with a circulating red blood cell volume less than 50% of expected and a very large number with the range of 60% to 70%. The brain, muscles and peripheral circulation are placed in physiological difficulty." Dr Byron Hyde
"M.E. has a UNIQUE neuro-hormonal profile. Prompt recognition and advice to avoid overexertion is mandatory." Dr Elizabeth Dowsett & Dr Melvin Ramsay
"M.E. is a clearly defined disease process. M.E. is a serious (acute-onset) diffuse brain injury and appears to be in the same family of diseases as polio and MS. This relationship is the reason that Gilliam, in his analysis of the L.A. M.E. epidemic in 1934, called M.E. 'atypical poliomyelitis.'" Dr Byron Hyde
Caring For The ME Patient Jodi Bassett Byron Hyde 9781445296395 Books
Jodi Bassett, an M.E. patient herself, along with being an international M.E. activist and advocate, has written an intelligent, compassionate and helpful book for not only M.E. patients and those involved, but for those patients misdiagnosed with C.F.S. Unlike M.E., which is a "distinct, recognizable disease entity that is not difficult to diagnose..." (pg.123 CFMEP) C.F.S. has no such objective testing criteria.She describes what it's like living with M.E. and the myriad symptoms we suffer from. She helps us understand why M.E. is misdiagnosed, and how it became erroneously linked to C.F.S. She gives a historical, medical and political overview that helps us understand why a disease like M.E., "recognized by the World Health Organization (WHO) since 1969 as a distinct, organic neurological disorder..." (pg. 113, CFMEP) came to be associated with a syndrome called Chronic Fatigue.
She includes resources and references which address,(in my mind), every conceivable bit of information a M.E. patient, their physicians and their caregivers need; for education, understanding, care giving, encouragement, (she includes many quotes from longtime M.E. patients), and living the best life we can despite the severity of this disease.
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Caring For The ME Patient Jodi Bassett Byron Hyde 9781445296395 Books Reviews
For a change, there's no mixed-bag diagnosis here lumping true myalgic encephalomyelitis in with other syndromes and fatigue issues. If you have M.E. or have to care for a patient who has it, the information in this book will help you. Apart from one heavygoing medical textbook, this is the only book on M.E. that I know of (and I've been reading on the subject for more than 20 years) that describes the real problems of its sufferers and offers good guidance for their care. The emphasis of the book is on supportive care, avoiding setbacks, and allowing self-healing to take place as much as possible; as of this writing, there is no curative treatment for M.E.
The Hummingbird's Foundation for M.E., founded in Australia by M.E. patient Jodi Bassett, has done more to raise awareness about this baffling neurological disease than most support organisations. With a focus on emphasising and understanding the difference between Myalgic Encephalomyelitis and what is commonly called "Chronic Fatigue Syndrome", the HFME is a beacon of hope for those with neurological M.E. This book is indispensable as a reference tool to keep on your shelf, or to give to friends and families and even physicians.
If you or someone you know has been diagnosed with M.E. or "CFS", this book is a must-read. Rarely has so much information been made so accessible for so many readers. Patients, carers, family and friends will find the book eminently readable, and clinicians will be satisfied with the mountains of research that have been crystallised in text format, and the many references to the formidable body of M.E. research that exists. Each chapter is presented as a stand-alone paper, so for those with little time and energy it's not necessary to read the whole thing chronologically.
Included in this book are practical tips for carers and patients, useful summaries of symptoms, and a clear introduction to the disease, as well as some of the political problems surrounding nomenclature, which make accurate diagnosis and treatment a problem for many.
For most patients with an M.E. diagnosis, the outlook initially is bleak. It's very difficult to find appropriate medical care when there is no widely accepted understanding of the condition. However, many doctors, patients, researchers and activists are changing that, and there is no shortage of seriously impressive research being carried out. "Caring For The M.E. Patient" offers tangible support for those with both moderate or severe symptoms. Armed with knowledge and science, it's much easier for the very vulnerable to face a terrible disease and a cynical world. I heartily recommend this book - I hope it will be as great an encouragement to you as it has been to me.
Not well organized. Information repeated.
Best author so far on M.E. hopefully the U.S. catches up soon to help the M. E sufferers get out of our life sentence of living dead. Suffering silently.
The most concise source of symptoms & expectations for ME I’ve found. Even though it’s not new, it cut through the purposeful confusion created with Myalgic Encephalomyelitis & explains the beginnings of the term Chronic Fatigue Syndrome & why not to use it.
my caregivers found this book to be very important in taking care of me while I lay in bed for 15 years until April 11, 2017
october 2017 bronchitis, ME back again, no i
If you love someone with ME, this is a must have. Understanding the subtleties of this heinous disease are needed to be know in order to effectively help a patient.
Jodi Bassett, an M.E. patient herself, along with being an international M.E. activist and advocate, has written an intelligent, compassionate and helpful book for not only M.E. patients and those involved, but for those patients misdiagnosed with C.F.S. Unlike M.E., which is a "distinct, recognizable disease entity that is not difficult to diagnose..." (pg.123 CFMEP) C.F.S. has no such objective testing criteria.
She describes what it's like living with M.E. and the myriad symptoms we suffer from. She helps us understand why M.E. is misdiagnosed, and how it became erroneously linked to C.F.S. She gives a historical, medical and political overview that helps us understand why a disease like M.E., "recognized by the World Health Organization (WHO) since 1969 as a distinct, organic neurological disorder..." (pg. 113, CFMEP) came to be associated with a syndrome called Chronic Fatigue.
She includes resources and references which address,(in my mind), every conceivable bit of information a M.E. patient, their physicians and their caregivers need; for education, understanding, care giving, encouragement, (she includes many quotes from longtime M.E. patients), and living the best life we can despite the severity of this disease.
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